Tia Willin gets annoyed when she comes to know Bruce Willis’s diagnosis of frontotemporal dementia (FTD). She is emotionally as well as deeply connected with her family and others. When her husband issued with this disease nobody cared to know but these days everyone would like to be aware of this rare disease FTD.
She describes it as a “Stephen King version of the movie 50 First Dates,” begging with memory loss. Ryan Willin, a Navy veteran demines at 39 age leaving them behind because of FTD.
Ryan died 14 years ago but Tia who becomes now a grandma is still awarding people about FTD. According to the reports of the Association for Frontotemporal Degeneration, every year approximately 50,000 people from America are diagnosed with it.
“The frontotemporal dementias are a subtype of dementias that are due to a loss of neurons in the frontal or temporal lobes or both,” neuropsychologist Karen Sullivan said. “Over time, this loss of neuronal networks causes the lobes to shrink or atrophy. It involves changes in behavior, language, and everyday function.”
The first signs of unraveling FTD
She told when her husband came back home from his job, our neighborhood children asked him to come and play and he join them a the trampoline. She said, “he was just one of them,” she tells Yahoo Life. “He absolutely adored his children. His last words he ever spoke were ‘the kids.’”
But when start to act like a strict dad, “instead of sitting down at the table with the rest of us to eat dinner, he would just pick up his plate and go to the bedroom and close the door to eat,” she says. Then she realized that now he never share what he did during the day.
Tia organized a Disney tour for her family so that he spent tie with his family, but he forget somewhere about their two children. And after that, he acts like he did nothing, and “he just sat down like, ‘I don’t know where they are,’” she says.
His behavior was changing and he never take it seriously, which is because of typical FTD. Clifford Segil, a neurologist at Providence Saint John’s Health Center in Santa Monica, Calif. Said, “sometimes patients present with memory loss first or language problems first or disinhibition first.”
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With time he becomes violent over small issues. Although they are very cool parents later he completely breaks plates, randomly gets angry, and much more she faced. Even he slap his child when the baby asked him for a spelling to write on a birthday card.
“Never in a million years did I think that I was kicking a dying man out of his home,” Tia says.
How to Diagnosis FTD?
When the treatment start our problem was not only a good doctor but getting a good facility because Ryan has no job to do now. In the begging, doctors thought Ran was issued with schizophrenia which is because of depression. But as time goes he even forgets his family members.
Later with by reading the book “The Mermaid Chair” written by Sue Monk Kidd, she came to know Ryan’s condition better. She lost her home to pay Ryan’s treatment fees. You can get more from (@washingtonpost)
Emma Heming Willis is asking paparazzi to keep their distance from her husband, actor Bruce Willis, who was recently diagnosed with a rare type of dementia.
— The Washington Post (@washingtonpost) March 6, 2023
“The average delay for a patient in getting an FTD diagnosis is 4.4 years, which jeopardizes targeted education, treatment, and management of these patients and their families,” Sullivan says. “This delay causes a lot of unnecessary pain and suffering and nonevidence-based treatments.”
“At first it was confirmation. Validation,” Tia says. “In the next second, it was completely crushing. It was a death sentence” — one without even a goodbye, as Ryan’s language and awareness were gone. He could only say “yep.”
When she decided to get a faculty for her husband’s care nobody stand with her, despite a local reporter who published his story and Ryan was admitted finally. “I’m trying to convince the people caring for him at the nursing home that he’s a human,” she said. Bruce’s dementia issue also confirms by CNN:
Bruce Willis’ family announced that the actor has a form of dementia, saying that while the news “is painful, it is a relief to finally have a clear diagnosis.” https://t.co/eb2IuM5CMB
— CNN (@CNN) February 16, 2023
Now she had no option but to get help all her friends, and family turned their backs. As Ryan spent his two years in a hospice where a worker tough her that “‘Ryan’s not going to survive this, but you and the kids are. You must do more than survive. You must live,’” she recalls.
She said losing someone you loved is like nothing to survive she suggests, “keep at least one of your feet firmly planted in the land of the living, and to remember to look around to the present and stay in the moment.” For her children “I can’t carry that with me the rest of my life,” she says because of the failure of the health care system.
Actor Bruce Willis has been diagnosed with frontotemporal dementia (FTD), a rare type of dementia which has no treatment or cure. FTD specifically affects the brain’s frontal and temporal lobes and is the most common form of dementia in those under 60. https://t.co/xIVYZZdCWn
— The Washington Post (@washingtonpost) February 17, 2023
The only reason to open her personal story is to aware people of how dangerous is FTD. Even you can lose your life because of it. So if feel sometimes your or your beloved behavior change and they start to panic at small things consult with a physician. You can follow us on our Twitter account.